Secrets to be Shared
Secrets to be Shared
Essential Tremors is Real I’m one of millions of people with ET.
ITS A SECRET….
Silence. Polite smile. Curious eyes.
This is the reaction I get every time I tell someone that I have Essential Tremors (ET). (Their eyebrows usually turn up as if in a question mark.) How can 10x more people have ET than Parkinsons and it be a secret? Not enough people, including medical personnel, Know about Essential Tremors! It’s a well-kept secret it seems, and I am one of many who want to change that! ET is real and we live with its challenges day in and out. It is passed on to our children, grandchildren, brothers, and sisters who have ET: It is part of our genes!
I Googled the web and here is the first entry I received when my search results came up:
Essential Tremors: Symptoms Of Essential Tremors | Official Website – Search For Answers from Across the Web with SuperDealSearch.com Now. Get The Answers You Need Here! This site and the sites that followed were all Sponsored!
So, I Googled International Tremor Foundation thinking International Essential Tremor Foundation https://essentialtremor.org would be pulled up, but instead: numerous sponsored sites, mostly promoting medications, a tool that helped Parkinsons etc. filled the page.
If I were new to Essential Tremors, I could find myself afraid or searching out sites where I can pose questions instead of find answers. The challenge is that people who have ET, well meaning in many ways, answer much the same way. Essential Tremors is not a well-recognized Movement Disorder. Here is the technical definition of Essential Tremors –
Essential tremor (ET) is a neurological condition that mostly causes rhythmic trembling of the hands while performing a task such as eating, writing, dressing, drinking or when holding a posture such as with the arms outstretched in front of the body. The tremor can also affect the head, voice, legs, and trunk. In other words, we shake!
Essential Tremors has been part of my health and life journey for over 7 years. I won’t die from ET, but it is devastating and disrupting to eating skills, walking, talking, etc. It affects about every body function that involves my head, mouth, arms, and hands.
That means the coffee spills when I raise the cup, salad flies off the fork, puddings and ice cream plop on the table, and napkins pile up in my lap like a silent garbage truck. So often a bit of food lands on skirt, jeans, shorts, or slacks, so I hurry up and use my spot remover to save my clothes when I wash them.
What can I do to be better physically: there isn’t a lot of research on exercise and ET, but I can tell you from personal and professional experience from Michael, my partner, and Personal Trainer that by strengthening your body; you more effectively fight off the elements of ET! My hands and arms are stronger. I can grip items more effectively. My balance is better, and I exhibit more grace when I walk, dance, or ride my bike. My core is getting more solid.
I am not a Certified Fitness Expert, but I am several steps ahead of physical decline. And my mind is lighter and more focused.
As important, I am telling the story about Essential Tremors on social media and in our community. My posts on Facebook are candid and often include a photo so I can be recognized as a voice for ET. I am asking friends and family to “share” the posts to multiply the number of people that can be reached!
I am reaching out to our local Chamber of Commerce, Women’s Club and Rotary to get on their speaker’s podium. I feel no fear. I will meet new people and more of our community will understand and respect the situation of their neighbors and be learned about a major neuro disorder. Yes, knowledge is power!
I am using Instagram now because my granddaughter, a member of the Z Generation and finishing her master’s in environmental science, has an Instagram page and I want to be current with the younger generation. Many younger people are now being diagnosed with ET, but they don’t talk about living with ET, they don’t want to be in the public eye, they hide. Yes, I have seen many Essential Tremor Group posts where people admit to hiding from family and friends because of how uncomfortable they are. Not me, no way!
My career was in sales so over 32 years, I used a Sales Script about what I did to bring the sale to a successful close. This script allowed me to answer a lot of questions someone might be thinking in just a few seconds and put everyone at ease. Get an ET Script in your mind so that when you tell people you have Essential Tremors, your voice is clear, and your message is concise.
ET Script: I have Essential Tremors, a neurological condition that causes shaking of the hands, head, and voice. Millions of people, just like me, have Essential Tremors so there is no reason for concern. I’ve got this!
Tag words: #Essential Tremors #ET # Neurological Condition # Shaking #ET Support groups #International Essential Tremor Foundation #I shake #Exercise # ET education #Z Generation. #Youth with ET
https/Essentialtremor.org
Silence. Polite smile. Curious eyes.
This is the reaction I get every time I tell someone that I have Essential Tremors (ET). (Their eyebrows usually turn up as if in a question mark.) How can 10x more people have ET than Parkinsons and it be a secret? Not enough people, including medical personnel, Know about Essential Tremors! It’s a well-kept secret it seems, and I am one of many who want to change that! ET is real and we live with its challenges day in and out. It is passed on to our children, grandchildren, brothers, and sisters who have ET: It is part of our genes!
I Googled the web and here is the first entry I received when my search results came up:
Essential Tremors: Symptoms Of Essential Tremors | Official Website – Search For Answers from Across the Web with SuperDealSearch.com Now. Get The Answers You Need Here! This site and the sites that followed were all Sponsored!
So, I Googled International Tremor Foundation thinking International Essential Tremor Foundation https://essentialtremor.org would be pulled up, but instead: numerous sponsored sites, mostly promoting medications, a tool that helped Parkinsons etc. filled the page.
If I were new to Essential Tremors, I could find myself afraid or searching out sites where I can pose questions instead of find answers. The challenge is that people who have ET, well meaning in many ways, answer much the same way. Essential Tremors is not a well-recognized Movement Disorder. Here is the technical definition of Essential Tremors –
Essential tremor (ET) is a neurological condition that mostly causes rhythmic trembling of the hands while performing a task such as eating, writing, dressing, drinking or when holding a posture such as with the arms outstretched in front of the body. The tremor can also affect the head, voice, legs, and trunk. In other words, we shake!
Essential Tremors has been part of my health and life journey for over 7 years. I won’t die from ET, but it is devastating and disrupting to eating skills, walking, talking, etc. It affects about every body function that involves my head, mouth, arms, and hands.
That means the coffee spills when I raise the cup, salad flies off the fork, puddings and ice cream plop on the table, and napkins pile up in my lap like a silent garbage truck. So often a bit of food lands on skirt, jeans, shorts, or slacks, so I hurry up and use my spot remover to save my clothes when I wash them.
What can I do to be better physically: there isn’t a lot of research on exercise and ET, but I can tell you from personal and professional experience from Michael, my partner, and Personal Trainer that by strengthening your body; you more effectively fight off the elements of ET! My hands and arms are stronger. I can grip items more effectively. My balance is better, and I exhibit more grace when I walk, dance, or ride my bike. My core is getting more solid.
I am not a Certified Fitness Expert, but I am several steps ahead of physical decline. And my mind is lighter and more focused.
As important, I am telling the story about Essential Tremors on social media and in our community. My posts on Facebook are candid and often include a photo so I can be recognized as a voice for ET. I am asking friends and family to “share” the posts to multiply the number of people that can be reached!
I am reaching out to our local Chamber of Commerce, Women’s Club and Rotary to get on their speaker’s podium. I feel no fear. I will meet new people and more of our community will understand and respect the situation of their neighbors and be learned about a major neuro disorder. Yes, knowledge is power!
I am using Instagram now because my granddaughter, a member of the Z Generation and finishing her master’s in environmental science, has an Instagram page and I want to be current with the younger generation. Many younger people are now being diagnosed with ET, but they don’t talk about living with ET, they don’t want to be in the public eye, they hide. Yes, I have seen many Essential Tremor Group posts where people admit to hiding from family and friends because of how uncomfortable they are. Not me, no way!
My career was in sales so over 32 years, I used a Sales Script about what I did to bring the sale to a successful close. This script allowed me to answer a lot of questions someone might be thinking in just a few seconds and put everyone at ease. Get an ET Script in your mind so that when you tell people you have Essential Tremors, your voice is clear, and your message is concise.
ET Script: I have Essential Tremors, a neurological condition that causes shaking of the hands, head, and voice. Millions of people, just like me, have Essential Tremors so there is no reason for concern. I’ve got this!
Tag words: #Essential Tremors #ET # Neurological Condition # Shaking #ET Support groups #International Essential Tremor Foundation #I shake #Exercise # ET education #Z Generation. #Youth with ET
https/Essentialtremor.org